Ambicare

What a crazy time so far. There have been some massive changes in just a few days. Time for the midweek report!

I am currently being treated as an 'ambicare' patient. It's a weird limbo between being allowed to go home and having to stay on the ward. The truth is that I'm not quite well or sick enough to do either! Instead, I am being put up in a swanky London hotel (owned by the hospital...) and looked after very nicely.

The Cotton Rooms near Tottenham Court Road.

As much as I like to keep an always-positive attitude, especially on the blog, my spirits are beginning to slip a little. Don't get me wrong, I'm not feeling sorry for myself! I'm just stuck in a state of shock and disbelief. My medical team have approached me and decided that I should be referred to meet with a psychotherapist which will happen shortly. It seems like quite an extreme option although I'm willing to give it go...

I see Gene Simmons from Kiss. What does that mean?

The chemotherapy has been bearable so far. I'm already four days in and the symptoms are being well controlled. One of the chemo drugs is a continuous flow for 5 days and cannot be disconnected. I must carry it around in a very sexy bumbag. When anybody asks, I just pretend to be American.

Nobody looks good with a bumbag, trust me.

Finally, a few summaries from last time: Moonface is definitely back. My brother is booked for transplant eligibility testing on Friday and thank you very much to everybody who donated to his marathon page too.

I'll be in touch soon! At the moment my focus is on keeping active, healthy and calm. So far, so good. Except for the psychotherapy referral. Peace out.

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Joshua Lerner

Hi! I’m the 'star' of Livin' With Lymphoma. The blog was founded on the 31st October 2013, on the day I was diagnosed with Stage 4B Hodgkin's lymphoma. I hope you find it funny and informative.

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